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Support And Mutual Help Group Directory 


Most groups have a national office to coordinate activities, such as fund raising, producing educational materials, lobbying for research funding, sponsoring conferences, and putting out a newsletter.

The local groups, if there are any, usually sponsor  group meetings and may also host social events and provide informed individuals with the problems who are ava ilable to talk with you.

Since local support group information changes so frequently, I have provided only the national office addresses and telephone numbers of the various organizations. You can contact them to obtain a current listing of gr oups available in your area.


Allergies

Asthma and Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
http://www.aafa.org


Alopecia

National Alopecia Areata Foundation
710 C Street, Suite 11
Sana Fall, CA 94901
(415) 456-4644


Appearance Impairment

Cranofacial Center
Children's Hospital of Boston
300 Longwood Avenue
Boston, MA 02215
(617) 735-6000

Institute for Identity and Body Image
Box 98048
Houston, TX 77048

International Cranofacial Foundation
1021 0 North Central Expressway, LB 37
Dallas, TX 75231
(214) 368-3590

Let's Face It
P.O. Box 29972,
Bellingham, WA 98228-1972
Contact Betsy at: wilsonbets@aol.com


Cancer

American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329
1-800-227-2345


Eczema

Eczema Association for Science and Education
1221 SW Yamhill
Suite 303
Portland, OR 97205
(503) 228-4430
http://www.eczema-assn.org

Talk Eczema
www.talkeczema.com is a great new site with lots of information, support, links, and books--an important resource.

ECZEMA LISTSERVE GROUP
Join this very helpful 300 member e-mail group at
http://ourworld.compuserve.com/homepages/ David_Hough
This website also includes archives of all group postings since Oct 1995.


Herpes

Herpes Resource Center
http://sunsite.unc.edu/ASHA/
c/o American Social Health Association
P.O. Box 13827
Research Triangle Park, NC 27709
(919) 361-8488


Hidradenitis Suppurativa 

Hidradenitis Suppurativa Foundation, Inc.
http://www.hs-foundation.org/
info@hs-foundation.org
7895 Via Belfiore #4
San Diego, CA 92129

Ichthyosis 


F.I.R.S.T.
PO Box 20921
Raleigh NC 27619-0921
1-800-545-3286


Lupus Erythematosus  

American Lupus Society
23751 Madison Street
Torrence, CA 90505
310-373-2137

Lupus Foundation of America
11921A Olive Boulevard
St. Louis, MO 63141
(314) 961-3014


Picking

Self Injurious Skin Picking Forum
http://www.selfinjuriousskinpicking.com/bb/

SaveFace Forum
http://www.network54.com/Forum/49010

Two excellent resources for skin picking and related problems.


Psoriasis

National Psoriasis Foundation
6443 Beaverton Hillsdale Highway
Suite 210
Portland, OR 97221
(503) 297-1545
They also have a very useful and well designed internet site at: http://www.psoriasis.org

Psoriasis Foundation
Northampton NN2 7JG
England


Rosacea 

National Rosacea Society
800 South NorthWest Highway, Suite 200
Barrington IL, 60010
(800) NO-BLUSH
http://rosacea.org


Scleroderma 

United Scleroderma Foundation
P.O. Box 399
Watsonville, CA 95077
1-800-722-HOPE


Vitiligo 

Vitiligo Support International
http://www.vitiligosupport.org
I especially recommend this group as a source of information
and support. Their Conferences are excellent. I was so impressed with
their work that I joined their Scientific Advisory Board.


National Vitiligo Foundation
P.O. Box 6337,
Tyler, TX 75711
Phone: (903) 534-2925
Fax: (903) 534-8075
E-mail: 73071,33@compuserve.com

Vitiligo Group
P.O. Box 919
London SE21 8AW
England


Vulvodynia 

National Vulvodynia Association
P.O. Box 4491
Silver Spring, MD 20914-4491
Phone: (301) 299-0775
Fax: (301) 299-39999


Warts (HPV, Condyloma)

ASHA/HPV
PO Box 13827
Research Triangle Park, NC 27709



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